International Foundation for Functional Gastrointestinal Disorders’ advice on finding a doctor, links to various U.S-based directories of physicians and other health professionals, and its care locators, searchable U.S., international and specialty directories of health care professional members with an interest/specialty in functional gastrointestinal and motility disorders who have agreed to be listed. Please use these directories only as a starting point, checking any listed professional for your own specific needs.
Rome Foundation Psychogastroenterology Group NEW, Fall 2018
Founded and maintained by Laurie Keefer, PhD, of Icahn Mount Sinai, New York and Sarah Kinsinger, PhD, Loyola University Chicago , both leading U.S. GI health psychologists, to encourage and educate on the use of psychological therapies for IBS and other gastrointestinal disorders, such as hypnotherapy and cognitive behavioral therapy. Website includes a private listserve for psychogastroenterology professionals, media coverage of psychological therapies for IBS, and a public directory of member professionals that can be accessed by people with IBS, families or other health care professionals searching for a provider.
Archives of Selected University of North Carolina Center for Functional GI and Motility Disorders educational videos and online chats with IBS and functional GI experts from UNC and other academic medical centers. Includes the former “Evening with the Experts” series, the more recent “Expert Updates” and the 2014 Patient Symposium in Washington, DC
(some for people with IBS and others for health care professionals)
From the Drossman Center, Chapel Hill, North Carolina, founded by Douglas Drossman, MD, MACG. Also founder and co-director emeritus of the University of North Carolina Center for Functional GI and Motility Disorders, as well as founder and president of the Rome Foundation, and numerous other clinical, research and academic roles in the international functional GI field over the past 40+ years.
International Foundation for Gastrointestinal Disorders, Inc. (IFFGD)
Mount Pleasant, South Carolina, USA (formerly Milwaukee, Wisconsin)
Association of Gastrointestinal Motility Disorders (Lexington, Massachusetts, USA)
Resources for people with gastrointestinal motility disorders, including IBS, of all ages and their families, including in-person support groups in its local area, telephone and online support for people in other areas or who are unable to leave home, and educational speakers, networking opportunities with other members
American Neurogastroenterology and Motility Society (Belleville, Michigan, USA)
This is a professional organization for researchers and clinicians in the brain-gut and motility fields. However, its officers, all leading researchers in the field, occasionally make themselves available for public Facebook or Twitter chats of interest to people with IBS and related disorders or their families. These are announced on ANMS’s social media.
Canadian Resources from the GI Society
including dietitian resources, and physician, pharmacy and health links for each province. Some may not be IBS or functional GI specific.
United Kingdom Resources from the IBS Network
including mental health professional directories May not be IBS or functional GI specific.
Monash researchers were the first to develop the low FODMAP diet, which, to date, is the only diet with evidence-based research as useful specifically for some people with IBS. Over the years, international interest and resources have increased, but Monash remains the definitive information source on which all other material is based.
Site maintained by Dr. Simon Knowles, Swinburne University of Technology in cooperation with Royal Melbourne Hospital and St. Vincent’s Hospital. Provides information on IBS, diagnosis, treatment, coping advice, many relevant IBS and mental health links in Australia and internationally, free, downloadable, research-validated online programs based on psychological techniques helpful for IBS.
New Zealand Resources
Founded by Alana Scott, a person with IBS, coeliac disease and food allergies, who comes from a restaurant family. She provides evidence-based information on IBS, the low-FODMAP diet, low-FODMAP recipes reviewed by FODMAP-trained dietitians in New Zealand, Australia, the United Kingdom and the United States, and most recently, paid custom meal-planning services.
IBS Audio 100 (home clinical hypnotherapy recordings from Michael Mahoney, Clinical Hypnotherapist, UK)
http://www.ibsaudioprogram.com (Gut/IBS specific)
IBS Hypnosis links, evidence based research and directory of Palsson-protocol-trained providers. Website created and maintained by Olafur Palsson, PsyD, Professor of Medicine at the University of North Carolina, Center for Functional GI and Motility Disorders, Chapel Hill, North Carolina.
http://www.ibshypnosis.com (Gut/IBS specific)
Hypnotherapy Directory, UK
http://www.hypnotherapy-directory.org.uk (May not be IBS-specific. Ask providers about their training and experience with IBS.)
Other Articles, Blog Posts and Resources of Interest
Good news for U.S. military service members and veterans: As of August 15, 2011, IBS and other functional gastrointestinal disorders are considered presumptive service-connected disabilities for the purposes of VA disability compensation if you served in the Southwest Asia/Persian Gulf region at any time since August 2, 1990. Service in Afghanistan was later added to this provision. Click here for a post on the IBS Impact blog for details and information on IFFGD’s advocacy for FGID-affected service members and veterans.
Read about “Ally’s Law” in several U.S. states or other resources and “can’t wait” cards in the U.S., U.K. and Australia. Be sure to click on update links in the post as well, for more recent information.
Read about employment and educational accommodations and resources in the U.S. under the Americans with Disabilities Act and/or Section 504 of the Rehabilitation Act, as well as Social Security disability issues.Originally written in 2011 especially for IBS Impact by Mike V. from the U.S., who has IBS and other disabilities. Revised periodically by IBS Impact in 2015-2018 to replace some outdated links.
Read a guest post written especially for the IBS Impact blog in May 2014 on personal experiences of navigating employment with IBS and other disabilities. Marcy Epstein, PhD lives in Ann Arbor, Michigan.
Read a guest post written especially for the IBS Impact blog in April 2013 on research on stigma and IBS, and concrete things we can each do to increase awareness and reduce stigma. The author is Tiffany Taft, PsyD of Oak Park Behavioral Medicine, LLC and Northwestern University in Chicago, Illinois.
Read a guest post written especially for the IBS Impact blog in April 2016 on how people with IBS, doctors and institutions/systems can all improve treatment for IBS. Jon S. has a degree in biochemistry and works in the tech sector. He has IBS and lives in the United Kingdom.
Read a guest post written especially for the IBS Impact blog in April 2018 on what people with IBS in the United Kingdom who may have IBS or are diagnosed with IBS can expect in accessing care through the National Health Service. The author, Julie Thompson, RD, is a Registered Dietitian and advisor to the IBS Network, the U.K’s national charity for irritable bowel syndrome.
You and Your Doctor: It Takes Two to Tango – HealingWell.com
by Pauline Salvucci
IBS Impact blog post 15 Common Misconceptions That Shouldn’t Exist About Irritable Bowel Syndrome (IBS)
Last Update to Resources page and alll links verified December 2018